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Table 1 Content of modules

From: The PRECISE (PREgnancy Care Integrating translational Science, Everywhere) database: open-access data collection in maternal and newborn health

Modules

Description and tools

General visit information)

Identifiers for future contacta, including Health Demographic Surveillance System (HDSS) numbers, as relevant

Geo-informatic variables of relevance, including from where the woman travelled to seek care, and how that travel was achieved (as performed in the Community-Level Interventions in Pre-eclampsia [CLIP] Mozambique Trial) [15, 16]

Baseline information & social determinants of health

Maternal demographics and pre-existing morbidities (Demographic Health Survey 7 [17], COLLECT database [11], and CLIP trials [18], informed by regionally-appropriate tribal categories in The Gambia, Kenya, and Mozambique

Grameen Poverty Probability Index for Senegal (as a surrogate for The Gambia for which there is none), Kenya, and Mozambique [19]

UN International Fund for Agricultural Development Multidimensional Poverty Assessment Tool, MPAT [20]

Education and occupation (as in the CLIP trials [18])

Social supports and transport (as in the CLIP trials [18])

Joint Monitoring Programme on Water Supply and Sanitation (JMP), WHO and UNICEF Multiple Indicator Cluster Surveys (MICS)- Household Questionnaire 2017 [21]

Past medical and obstetric histories

COLLECT [11]

CLIP trials [18]

Demographic Health Survey 7 [17]

Nutrition

Dietary Diversity Score from the Healthy Life Trajectories Initiative (HeLTI) [22]

Current pregnancy details

COLLECT [11]

CLIP trials [18]

WHO recommendations on antenatal care for a positive pregnancy experience, 2016 [23]

Maternal Death Notification Form – South Africa 2014 [24]

Maternal mental health (WHO Maternal Woice Tool – antenatal care [25])

Details of placental disorders

COLLECT [11]

CLIP trials [18]

fullPIERS [26] and miniPIERS [27, 28] predictive models of adverse maternal and perinatal outcome in pre-eclampsia

Details of stillbirth in INDEPTH standardised verbal autopsy tool [29]

Labour and delivery

COLLECT [11]

CLIP trials [18]

Adverse maternal outcome by Delphi consensus (fullPIERS [26] and iHOPE [30])

World Health Organization. WHO Recommendations on Antenatal Care for a Positive Pregnancy Experience. Geneva, Switzerland: World Health Organization, 2016 [23]

Preterm birth phenotype [31]

Intergrowth-21 standards for weight at birth [32]

Averting Maternal Death and Disability (AMDD) Needs Assessment Toolkit: Modules 9 (Chart review for women with obstetric complications) and 10 (Chart review of newborn mortality) [33]

ICD-MM [International Classification of Disease-Maternal Mortality (ICD-MM [34])

Maternal Death Notification Form – South Africa 2014 [24], Kenya 2017 [35]

WHO 2011 Maternal Near-Miss Morbidity Approach [4] informed by an African Delphi Consensus process [36]

WHO verbal autopsy tool for stillbirths [37], INDEPTH Standardized Verbal Autopsy questionnaire [29]

International Classification of Disease-Perinatal Mortality (ICD-PM [38]

Ministry of Health Perinatal Death Review Form – Kenya (2017)

WHO Making Every Baby Count initiative [39]

Maternal and newborn outcomes

Postpartum health

Post-traumatic Stress Disorder Checklist-Civilian Version, PCL-C [40]

WHO Maternal Woice tool – postnatal care [41] (for mental health, violence against women and other maternal morbidity)

WHODAS tool 2.0 [42] (health functioning)

EN-SMILING tool [43] (early childhood development and infant nutrition)

DHS-7 (also infant nutrition) [17]

  1. a To be stripped by encryption when data are transmitted to the central servers at UBC